Goals update

I seem to have lost a post somewhere... but anyway!

A quick update

Goal 1: 6kg down and have started a bit of road running. Went this morning with The Band which was cool.

Goal 2: Have put together a very detailed calendar step by step for getting the business started. We were told last week that our offices will be moving from Stellenbosch to Cape Town by the end of next year. Feels like confirmation for me. There is no way I am happy to spend 2 hours a day in traffic and even less so if we have a child by then, so ya, feels like the end of an era, and my mind is pretty much made up.

Ooooooh I nearly forgot! I went to the SHRINK last week! I was quite disappointed: no lying on a chaise lounge like in the movies... just sitting on a couch (hardly the same!) It was good. Some of it was very helpful, particularly as she specialises in pregnancy related psychology and understands the medical side of things... ya, who knew there even was such a thing. Basically she was on the whole trying to see if I was suffering from post traumatic stress and if my marriage was suffering. negative and negative. I am doing fine, just walking the long and lonely road of grief. I won't go back, I don't think it is necessary, and she doesn't either, though she gave me stuff to read and things to look out for.

Anyway, that's me and where I'm at. Still fragile - yesterday a friend with a newborn mentioned something in passing about another friend who is having her caesar today. It was actually quite a funny story and at the time I laughed, but minutes later it hit me again: the sickening realisation that yet another friend will be having her child (the first of my friends to have a girl since... and she will be dark haired on top of it) and I am stuck on the same treadmill, running and running and getting nowhere and watching their joy, their self-indulgent pity (*sigh* I am getting no sleep *smiles fondly at baby*) UGH! and drowning in envy and what ifs and could have beens. Putting on the brave face when I see them, crying with the pain when I'm out of sight, and feeling the emptiness of here.

Baby Loss Meme

Living in the Rainbow suggested I do this meme. There is something jarring about the fact that there is even such a thing as baby loss meme. That's not to say I think it is wrong, I think it just jars because traditionally blog memes are such frivolous fun things (Got writer's block? do a meme) and this one is so not that.

Losing my baby girl has opened up this whole other world in my life... I was completely oblivious of its existance until 2 months ago. Now I have friends from around the world thanks to a shared tragic commonality. In many ways I feel like I know other "baby lost" parents better than some people I've known all my life. Another part of this world which jars me is that it has its own lingo. Baby lost parents. Rainbow babies. TTC. etc. etc. There is something so sad in that. I'm trying to figure out what the essence of that sadness is and I suppose it is that this whole realm is so established. So real. So definite. But I digress...

Onwards to the meme. Oh... and BTW I am going for complete honesty here, trusting that this is a safe place for that.

1. What do you want people to know about the child you have lost?
I guess the initial and most obvious thing would be that she is a person, she has an identity, she is loved, she matters.

When we got to the hospital on that awful day and they scanned but found no heartbeat, I asked the doctor whether the baby was a boy or a girl. She responded "that's not important." A while later when she was finished with the "intense" part of the scan (where she was really trying to figure out what went wrong and what danger I was in) she asked if I had questions. I said "yes. Is the baby a girl or a boy?" She said "why is that important?" In my head I was screaming, but I was muted by shock and so Stef answered "because it is!" She checked and told us that she was a girl.

That moment was a horrible one for me. Of course now with the shock subsided I would be able to give that doctor millions of reasons why that questions matters. Some of them are: I knew her, we knew her, we loved her, we love her, we miss her, we have dreamt of her, we look toward the day we will see her again. When a person dies, we don't forget them... really pointing out the obvious here: a baby is a person! It is not as if some miraculous metamorphosis happens between the womb and the outside world and so I guess that takes me back to the first line of this answer.

Sophia is our first born. I have a daughter. We are parents. We will love all future children of course, but they can not replace her.

2. What names did you give your child and why?
We had decided to go the traditional route and not find out whether we were having a boy or a girl. We had names in mind for both. Nevertheless, as I've mentioned before, I knew we were having a girl. I had dreamt of her and seen her in my mind's eye so many times and when people used to say they "knew" it was a boy I'd be downride annoyed with them.

When "everything happened" we needed to decide on a name. We'd originally wanted to name our daughter after my gran who died last year, but knowing our little girl too had died, I just couldn't do that. And so we went with the name we had saved for our second daughter, Sophia Grace. It was a sad moment... naming our child. I was still in labour at that stage and it was so so far from the "moment of naming" that I had expected. I had thought that I would be holding my baby girl, cuddling her, a lifetime of possibility before us. Instead it was a sad conversation in a hospital hallway.

Sophia Grace is a beautiful name and it suits her. I wrestle a bit with this though: I don't want to ever be at a place where she becomes "she who shall not be mentioned". I want to speak of her and have people speak of her and yet I can barely say "Sophia" without my voice catching and my eyes filling.

We didn't even know, when naming her, that Sophia means Wisdom. Wisdom and Grace are her names and I believe her character has both. Both are what we need in navigating our way through this.

3. What rituals or ways of memorializing your child seem to best help you cope with their loss?
The day I found out I was pregnant we began a book of letters to Sophia. We recorded all the adventures of pregnancy, all the scans, the first kicks, the special moments. We had planned to keep writing in that book until she was 21 and giving it to her then. We have continued writing in that book from time to time.

I also had her name inscribed on my wrist and I love that.

I have chatted with the ladies from Bosom Buddies about their supporting moms whose babies die and I hope to become more involved in this after a time in honour of my daughter. I think that the various ways moms and dads honour their children's memories is incredibly beautiful. I will do a whole post on this at another time.

I think as time goes by I will find different ways of keeping her in remembrance.

4. What are the kindest and/or most helpful things people have said to you? What are the worst?
The kindest things really are when people have the guts to acknowledge what has happened, to say they are sorry for us and to call her by her name. SO FEW PEOPLE mention Sophia by name. She is reduced to "that thing that happened". So I guess it's not in specific words, it is more in people's attitudes. People mean to be kind when they pretend that nothing has changed. I know their hearts are right... they don't want to put me on the spot. But it grieves me... things HAVE changed. EVERYTHING has changed. My daughter matters and mentioning her by name acknowledges that.

People have, in general, been thoughtful, but some of the worst things have come from some people closest to me and have actually been intended as kind. Two examples:

The first: a friend of mine who has an adopted child and a biological child said through my process she has now realised that you are a mother throughout pregnancy and beyond. Seeing me suffer has made her realise that. She never used to think that way because she never thought of her adopted child's biological mom as a mom at all. The biological mom never held him, comforted him, fed him. She "merely" carried him for 9 months.

I realise that it may be difficult to see why this was so sore to hear... I'll try to explain. I guess it was the mention of any doubt at all that you're a mom from the start. I guess it was the initial dismissal of the bond a mom and child share through the womb in comparison to the shared joy that follows birth.

The second: my closest friend is fiercely protective of me and I of her. When I returned from Plett, she told me that when she'd heard what was going on, she had just wanted to drive there and be with me, but, she said, in retrospect it is perhaps good that she didn't coz The Band and I were so strong and so sure in our actions and choices in that time (referring to us knowing that I should go through natural labour instead of a c-section).

She said (and here it comes....) when she'd heard that I was going through labour she couldnt bare the thought of it and felt that those doctors should just "get it out of Caz". Now I don't know if she said "it", maybe she said "her" but that's what I heard. My daughter, reduced to an "it" to be eradicated. That one hurt a lot, probably because I think that just about everyone (The Band excluded) probably felt the exact same way. I know my brothers and my dad couldn't understand why I was going through labour. And all these people only felt this out of love and protection for me. I know that. But for me, as a mom, I would have laid down my life for my daughter and it's heartbreaking that those closest to me still think of me first... if they'd ever met her, or known her like I had, she would have captured their hearts too... not just the prospect of her, but HER and then they may have felt differently.

Hmmm I am aware that the above is confusing and I don't know if it'll make any sense to anyone. oh well.

5. Who is your hero? Who helps you make it through the dark days better than anyone else on the planet?
The Band - he draws me out of myself. He loves me unconditionally. He doesn't judge. He knows when to just hold me. He speaks of Sophia with such love.

This blog - an outlet for so many emotions. A place of support and love. Through blogging I have had the privilege of learning through the experiences of others and of getting glimpses of their children who, perhaps, are friends with Sophia in heaven.

Claudine - Claudine lost her daughter last year and has since given birth to her second child, beautiful little Madison. The midwife at the hospital called Claudine and asked her to come visit. She ended up coming by every day of my hospital stay. I think that hearing her story, her lessons, before I'd even given birth was immensely helpful and made such a difference to the whole thing. We have stayed in close contact and I have come to value her as an incredible women and a very caring friend. She totally gets it and I thank God for her.

My aunt aka FA (favourite aunt) and I am FN (favourite niece) though no one knows about that but us :).
FA lost her husband 10 years ago in a tragic car accident. They were very much in love and weren't yet forty when it happened. She has known tragedy. And she has known grief. She has known the reality of life moving steadily on all around you while you are stuck at the point of impact. She generally calls me once a week on a Wednesday coz she knows Wednesdays are tough days for me. She sometimes remembers it's Wednesday before I do. She asks the questions that no one else is brave enough to. She gets me to talk about things and she always calls Sophia by name.

The Guv - ok, ok, so The Guv may not be a hero (although he is a skilled fly slayer and we are very proud of his prowess!) but he is a delight. This little kitten crept into our hearts and has brought us so many laughs and much joy. Waking up to a handful of fur staring at you about 3cm from your face and purring furiously means that your very very first thought is not of your despair and grief. And no, as one person asked, I don't feel like he somehow fills the gap because now I have something to mother (I MEAN SERIOUSLY!????) but a kitten is a very sweet thing, and this crazy little feline is particularly special and in fact warrants his own post on another day.

6. Is there anything you need to say or want to say but haven’t been able to? Can you say it now?
Unless you have lost a child (in which case the following becomes a thing of hope for me) please don't tell me about your baby or your pregnancy. Please don't hear what I'm not saying: if you have a blog, what you write there is 100% your business, your space, your privilege, it is my choice whether I am strong enough to read it or not, but here in this space and particularly in real life, don't assume, because I am going through the motions, sucking it up, smiling, laughing, joking, that I'm not in agony. The constant narrative in my head details how different things should be now, how big Sophia should be now, what we should be doing now.

Also curiosity kills the cat, or as the Afrikaans say "van nuuskierigheid is die tronke vol and die kerke leeg" (from curiosity, the jails are full and the churches are empty). I understand the heart behind it, but don't worry about warning me against reading this magazine or that blog... that makes me curious to know what you think I shouldn't read and makes me more likely to read it.

I am sadly far from the place where I can feel genuine joy for others with regards to their babies... It hurts so so much to hear about babies and pregnancies. I hope and pray this changes at some point, of course I want to be happy for people I care about and I am, but it is coupled with so much agony.

The Band and I actually spoke about this last night. It is not the same for him and he had no idea that it was as bad for me because I am very talented at putting on a happy face. What would be helpful is for you to pray for me on this one because as I have mentioned in the past, I don't want to feel like this, it's not something I like in myself, but it is the way it is.

7. How are you doing? How are you really doing?
I have my ups and my downs. In general I am somewhere inbetween. Everything has changed. I feel this defiant indifference with regards to the opinions of others, a kind of "this is me, take it or leave it" attitude which is really probably only some lame attempt at trying to regain some form of control. I really really battle to be mentally motivated. Work feels like running on a treadmill uphill in the heat and without the endorphin rush. I feel like my life is in limbo until I have another child. I feel like there is such unfinished business just hanging in the air... I am a mom without my baby. Empty arms. I feel restless in this place.

When I am down (ya, the above is not a description of down.. that's just the normal... scary but true) I feel like I am drowning. It is a terrifying feeling. A suffocating, desperation. An awful, dreadful powerlessness. Reminds me a bit of The Nothingness in The Neverending Story. When I am up I feel hope... hope for the babies we will still have (God willing). Hope for the day I meet Sophia in heaven.

Hope for Lily?

I just found this article on how a guy in a permanent vegetative state for 3 years was given sleeping tablets which paradoxically awoke parts of the brain which were deemed dead. This mom tells of how they are giving the drug to their brain damaged daughter. According to the scans, there is something in the tablet which increases oxygen flow to those parts of the brain. Could this be a possibility for Lily?

Anyone have any clue how I'd go about taking this forward? I have been trying to track down the doctor - Dr Wally Nel - but no luck so far.

Any ideas?
Meanwhile I'll keep you posted!

Can you imagine

not knowing what colour your daughter's eyes are?

not knowing the sound of her laugh? or cry?

listening to people talking about their children, their babies, in front of you, knowing that to them it's nothing, but to you it's everything and something you'll never have the absolute privilege of doing?

realising all over again that this is it.

If you can't imagine, this is how it feels:
sickening, physically nauseating, physically painful, lonely, very, very lonely, isolating, desperate, dark.

Why I haven't been writing

coz I don't have much to say.

Life is just moving along. Work is really busy - focusing on our new Vote Earth campaign... listen out for the radio ads, my voice features.

Still going strong with Goal 1 and am now 5kgs down.

Goal 2 is tougher, the life coach has given me a values survey to fill in, the theory being that you are more likely to achieve the goals that support your values.

Finally had a bit of progress with The Band yesterday when he muttered something mildly bitter about someone with kids. I think I actually said "FINALLY!" Crikey... it's a relief to see some kind of self pity there because I am frikken swimming in it!!

Beauty from ashes

Great things done in Sophia's name: read about it here.

Goal update:2

Goal 1: Get in shape
Progress: Have now lost 4kgs. Yay. Really enjoying the eating plan still, especially now that the SIL has taught me how to cook all kinds of vegetarian curries etc. Also loving the variety of exercise I've been doing: spinning, abs classes, powerplate classes, hikes, etc.
Next steps: Keep it up!

Goal 2: New venture
Progress: Have appointed a life coach who specialises in helping entrepreneurs to start their businesses. Perfect no? Even more perfect: he happens to be my brother. Have also, somewhat cheekily, already grabbed at an opportunity to feature the business in a publication that is coming out for tourists attending the world cup. How's that for bold? Have also acquired some contacts in terms of setting up a CC etc.
Next steps: Meet up with the brains trust to determine (official) first steps.

2 months

Two months ago today I was in labour. My life was in peril. My heart was held together only by prayers. The ground was falling away beneath me. My dreams were dying.

Two months ago I held you in my arms. My little bundle wrapped in pink. You were heavier than I expected and I was so tired. But you were beautiful. If I could go back I would hold you forever.

Goals update

The Virgin Life Care website assures me that I have far greater chance of reaching my goals if I track my progress, so bear with me!

Goal 1: Get in shape
Progress: I've lost about 3kgs. Feeling a bit happier in my own skin, but still a way to go! To be honest, for the most part I'm enjoying it. The exercise has been so good for me. The eating side has been made easier by a visit from the Sister-In-Law who is a great healthy food cook.
Next steps: Don't lose motivation when my training buddy goes away for a whole month!

Goal 2: New Venture
Progress: Sent emails to people whose wisdom I want on this, my parents and a couple in the church. Wanted to hear their perspectives in terms of where I'm at and who I am rather than the merits only of the business itself. Is it wise for me? Got some good input. My dad's main advice is about minimising risk, in other words, start the business and have it viable before before resigning here. Makes sense, but will be tough doing both.
Next steps: Set up a meeting of what The Band has dubbed The Brains Trust. Pick the brains of a few close friends with experience of starting their own ventures, setting up CCs, etc etc.

Will keep you posted x

Walking the tightrope

People who see me for the first time always ask me how I'm doing (*intense look, head tilted to the side*) What do you say to that? I still don't have a good standard answer. The polite thing to say is "alright thanks". The truth is "up, down, surviving, drowning, glimmers of optimism, chunks of denial, pools of depression, zero motivation, infinite sadness, despair, hopelessness."

Yesterday I had this strange feeling. As I mentioned before, I've been in distraction and avoidance mode lately, and yesterday it felt like this: I remembered again with shock what had happened to this girl I know. This girl I love. She had the most awful thing happen to her and I feel so sad for her. I felt muted shock as I recalled it. That girl is Caz Past. The Old Me. The girl who is no longer here. What a weird feeling. To feel sorry for a past you. To think of yourself in the 3rd person. I guess perhaps I got a glimpse of how others might feel about me. As I allowed myself to think about it more and more the externality of that grief became less. The grief merged back into its rightful place; within Caz Now.

I wonder if there are elements of depression setting in. If I should go speak to a grief counsellor. How would I know? I have mastered the "I still fit in with all of you, lets discuss inane frivolous things" act. I feel an expectation from people to suck it up now. They see the "together" me and think that's my reality, but that's a fraction of it. There is a lack of joy. There is a sick heaviness that never leaves. I think of summer and I feel so so sad. I am dreading summer. I guess its mostly because of how different it was meant to be but also because last summer was one of such adventure - we had an amazing journey - bazaruto, zimbabwe, zambia, it was a time of such joy and excitement all culminating in Sophia's conception near Victoria Falls. This summer takes me somehow further away from Sophia.

that damn sun

The last two weeks I have been kept really busy. I am back at work, I am also now able to exercise so been doing plenty of that. I've allowed myself to just escape in it all. When I have a moment, I swallow it down and get on with something else. Distraction.

But it bubbles there, this grief. It prowls beneath the surface and when I let my guard down, out it creeps.

The other day I walked through The Room Formerly Known As The Nursery. It was mid-morning and the sun was shining through the sliding doors which open out to the garden. It looked so beautiful and warm. A wonderful place for Sophia to rest in.A place I would want to rest in. A place to sit, nursing my baby girl. A place for the two of us.

Something as small as the sun shining in crushed me. The room is no longer a nursery. It is now just a shell. Everything packed away. An empty, echoey room.

Lily...

So many have you have contacted me either through this blog or seperately to find out if you can donate money to help with the situation. Thank you all for caring.

I don't want to take any money until I know what it can be used for so I will (obviously) keep you guys posted. At this stage I'm not sure how money could help.

What is needed first and foremost is for a home to accept her... so please - those of you who do - pray for that.

South African Tragedy: Part 5

I should be surprised, but really I'm not.

So Tuesday Kuselwa and Mavis go to the hospital to be with Lily* when she is moved to Sive Nathi. They wait and wait and wait. They are told that when the ambulance driver is ready he will take them. They wait and wait and wait some more. Eventually at 16:30 he is ready but needs the phone number of Sive Nathi before he will leave. The hospital does not have it. The social worker can't be reached. Mavis calls me and i find it for her.
They phone to confirm that Sive Nathi are expecting them. Affirmative.

So? all systems go right?

No. Now the ambulance driver has disappeared. They wait and wait. They ask and are told he will come back. Eventually Mavis leaves to be with her children. Kuselwa waits some more. She ends up spending the night in the chair next to Lily's bed.

AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAARGH
I can not believe the complete disregard these people have for this woman. How can you care so little? Even forgetting the fact that they have ruined her life and destroyed her child, it is shocking to treat someone like that. As if her time means nothing. As if her comfort means nothing. She is missing work to be there because they told her to, they don't give a dam.

Eventually yesterday at mid day the ambulance dropped them off at Sive Nathi.

It gets worse.

Sive Nathi looked at Lily and said they can't care for her. She needs medical attention daily, they only have a doctor visit once a week. Surely her condition was communicated before they got there? Before they approved her arrival?

And so Kuselwa and Lily waited and waited again for the ambulance to return and take them back to Stellenbosch Hospital.

False hope is cruel. What choices are left for this child?

I spoke to the social worker today and she reckons that Lily does not need to see a doctor daily at all. If she was ill, sure, but she is not. She thinks everyone is avoiding taking Lily because of the legal issues surrounding her story. They are scared to get involved. How sad is that? Fortunately the social worker has really taken this case to heart and I know that she will do everything in her power to find a place.

* the saddest thing ever. Mavis told me she went to the hospital on the weekend for the first time in a while. She said when she said hallo to Lily, Lily began to cry - silently - then she calmed down. When Mavis said goodbye she began crying again. Also when they were packing her things and preparing to leave the hospital on Tuesday she cried again. It seems that incredibly, she must have some cognicense of what is going on. I'm not sure if this is heartbreaking and hopeful or just plain heartbreaking, but I do know that this little girl absolutely needs to have company, to be spoken to, to be stimulated.

Goals to keep me going

Over the past week or two I set myself a few goals. Goals and deadlines are what make me tick. I'm pretty useless without them.

Goal 1:
Lose all the pregnancy weight and a bit more.

I didn't want to stuff around with random diets and eating plans also I need to make sure that my body is a healthy one going forward so I bit the bullet and went to a dietician two weeks ago and signed up at the shmancy new Virgin Active.

I am a week and a half into my new, improved way of eating (basically low GI) and it is a breeze so far. Seeing dietician on Friday so will update you then. Been gymming and spinning and powerplating and hiking and am really loving it at this stage.

Goal 2:
Launch a business that would:
a) Provide me more freedom to spend time with the Band and future children and to allow me to invest time in people, to be there for people if they need me. for example if a mom finds out that her baby has died and needs to speak to someone, I'd like to be able to go be with her.

b) Provide opportunities for incredible women who currently have none. AKA Mavis's sisters.

c) Provide a decent income and a brand new adventure.

I've got the idea worked out and have been speaking to relevant people about it. For now I just need to muster up the energy. I am so mentally demotivated... really battling to focus on my work too. The Band is trying to help me set small steps and deadlines. Once I get going it's ok, but getting going is tough.

You guys need to help keep me motivated, ok?

South African Tragedy: Part 4

I went to see Lily today over lunch.

Wow. My heart. I can't make peace with what has happened to this beautiful little girl so how on earth can her mom?

The good news is that the social worker has finally found a home that will take Lily in. She says she has been hounding all the homes for months and months but they are all either filled beyond capacity or don't have the facilities to care for a case as severe as Lily.

Anyway, finally a place called Sive Nathi (God hears us in Xhosa) has agreed to take her in. I found this infoon Sive Nathi and it is a bit outdated, but wow. It sounds like a sad story too! People genuinely trying to make a difference with pretty much no support from government. You can check out their website here.

Basically they are at this stage needing R500 per month in order to accomodate Lily. I told the social worker that of course that is fine. Although she was trying to see if she could get the hospital to contribute which I believe they should, on principle!

Anyway, once Lily has been moved there I will try go see it and see what some of the realities are. Will keep you guys posted.

These are my friends

And suddenly it all started making sense....

The Others

One of the really horrible and unexpected results of "the thing that happened to me" has been my reaction to pregnant women and moms with babies*.

I know it's a cliche to say "you feel like you've been punched in the stomach" but that is the precise feeling when I see a pregnant woman. It's not even just seeing them. It's reading on facebook how you are "loving cuddling your baby" and how you "can't believe she's already 3 months old!" that makes me want to vomit. I wonder if this eases over time coz it feels like it is getting stronger. Perhaps only when I am pregnant again myself. But perhaps not even then.

The envy that courses through my body when I see or read such things is hard to describe. I can't say I'd ever genuinely envied before all this. I suppose there were moments of envy, but it would be inconsequential things, this is 100%, full blown envy and it's not pretty.

I scowl. I actually do. Sometimes, if I'm with a friend, I make a joke of it and hiss at the pregnant woman (not so that she can see of course). But the truth is it is not a joke. Even when I'm alone and I see one my face contorts into a grimace. It's not intentional, I don't want to feel this way, I don't want to have no joy left for others, but right now that's who I am. Not proud of it at all.

Pregnant women all look so oblivious, so genuinely carefree and happy. I'll play the psychoanalyst here: perhaps what I despise in them is the resemblence between them and me when I was pregnant.

It sickens me to think how I moaned about being uncomfortable. How I longed for the pregnancy to be over. How I felt sorry for myself!??!?! How I took it all for granted. I hate those parts of my past, pregnant self.

* Randomly there are exceptions to this. Certain people, if they are sensitive toward me or if I can see that they truly know and appreciate how blessed they are, don't upset me. But those women who gush in front of me, or directly to me - and yes, it has happened - about their delight at being pregnant, and those new moms who moan about getting no sleep and being so tired.... they give me violent thoughts.

90 years and still crying

Last night I spoke to The Band's 90 year old gran, Ouma.

She lost her second baby when she was about 5 weeks old. I had known this via my father in law, but Ouma has never ever spoken about it to him or anyone. Last night she broke that and spoke about it to me.

She said that she still cries for her baby. 60-something years later she cries for her baby and longs for her. She says the pain never ever goes away. Over the years you cry less, but you long for that child all your life. You see a baby and your heart aches - even if you've had other children.

Her baby died 6 September, her anniversary and Sophia's are days apart. I think our loss has been so so hard on her. Sophia is her first great grandchild.

I think of this woman carrying so much pain for so many years. In those days the solution was "you'll have other kids". I suppose there was little understanding and so she carried it all alone. Bottled it all up inside. She never spoke of it to her husband or her children. What a lonely road.

I so appreciated her just speaking straight with me. Everyone tells me it will get better. Here's a woman who has gone through it herself. She warned me: Caz, it doesn't get much better. That is the blunt truth. Don't get me wrong - there is still so much joy and beauty in this life. I would still, on the whole, describe myself as a happy person. But the pain is here to stay and quite frankly, I wouldn't have it any other way. Weird but true.

Ouma said that the first thing she plans on doing when she gets to heaven is finding her girl and mine and telling them how much they are loved.

Guess who's back

back again

(at work)

Day 1 yesterday was not bad. I arrived and my office was full of flowers and chocolates. About a million people came in and gave me hugs from the CEO to the cleaners - which is one of the things I love about where I work, amazing people.
It was intense but ok.

South African Tragedy: Part 3

Sorry guys. You've asked a few times for an update on Lily and I haven't gotten to it. (For those of you with no idea what I'm on about, check here and here)

The news isn't great. It all went down in June and her condition hasn't changed. About a month ago she was transferred back to Stellenbosch Hospital from Tygerberg Hospital - I guess it's a capacity thing - which isn't great as Stellenbosch is where the bugger up happened in the first place. Mavis, our maid (Lily's aunt) says that the other day her sister noticed that two of Lily's bottom teeth were missing. She asked the nurse and the nurse said perhaps they had been knocked out when they suctioned excess saliva from her mouth. Perhaps I am being paranoid but to me that sounds like they are not exactly being gentle with her... A 2.5 year old's teeth should not be knocked out very easily. It is concerning to me and to Lily's mom of course.

Ah man, the whole thing makes me despair. I can't believe how powerless we really are. The social workers are apparently trying to find some kind of home for Lily to be moved to but apparently they all say that her condition is too bad. I spoke to the Band about Lily coming here to our house (If she ever does have to leave the hospital I can't think that she should go lie in a shack - the risk of infection and other unsafeties is high and scary) but the reality is that she needs to be in a place where there are people all the time. So I guess the waiting continues.

In terms of the lawyers... well they take forever. I think that's just normal with the law process.

Mavis says her sister (Kuselwa - Lily's mom) is really battling. She works 6 days a week and earns a horrific salary. Her work have never once asked about Lily and in the times she has had to rush to the hospital they have shouted at her telling her business is business. No compassion. This poor woman is so alone. My heart breaks for her. What's more is that even Mavis and the rest of the family battle with visiting Lily. It is really hard for them. Mavis says that she feels so bad - she is hardly even asking about Lily and acting like she doesn't care, but it is because she cares too much and it hurts too much. She said that when I went to hospital she was finished and realised she (mavis) wants to go for counselling to deal with what has happened to Lily and to me.

This is such a special family. I wish there was more that I could do. Providing employment for Kuselwa would be a start, but I wish that Lily could at least be given some dignity instead of remaining in the care of the same staff who allowed this nightmare to happen in the first place.

When I compare situations - Lily in that cold hospital and me in the Plett Mediclinic - the only patient - I realise how terribly unfair life in SA still is.